Rheumatic diseases have wide-ranging symptoms and impacts in physical, emotional, and social health. Their measurement and inclusion in making clinical decisions is not optimal.
The Center for Patient-Centered Outcomes Research in Rheumatology was established by Dr. Clifton O. Bingham, III to support and expand research that will inform and enable more complete integration of patient needs and priorities in rheumatology research, education, and clinical care.
The Center provides infrastructure, expertise, education, and enrichment activities to expand the cadre of rheumatology PCOR researchers. We seek to facilitate innovative, collaborative, and transformative patient-centered research that will improve the lives of people living with rheumatic diseases.
Infrastructure and Expertise
The Center brings together multidisciplinary researchers, collaborators, and stakeholders to provide expertise in conducting PCOR.
- PCOR methodology
- Patient-Centered outcomes in clinical trials
- Qualitative methods (e.g., focus groups, interviews)
- PRO development and validation
- Stakeholder identification and engagement
- Patient research partner involvement
- Consensus-based prioritization activities
- Health information technology
- PRO integration into clinical practice
- Tailored dissemination of research findings
Education and Enrichment
A major goal of the Center is to increase awareness among researchers and patients of the evolving field of PCOR and methods to conduct this research.
- PCOR Methods Seminars for Researchers
- Patient Education Sessions
- Web-based Educational Resources for Patients
- Pilot Project Funding
Ongoing Research
- Qualitative studies in rheumatoid and psoriatic arthritis, myositis, interstitial lung disease, and other autoimmune and musculoskeltal illnesses
- Developing and validating PROs
- Integrating enhanced PROs in clinical practice
- Determining clinically relevant changes in outcomes
- Evaluating the impact of patient disease education on health outcomes
Funding
Research has been funded through:
- Patient-Centered Outcomes Research Institute (PCORI)
- National Institutes of Health (NIH)
- Rheumatology Research Foundation (RRF)
- Ira J. Fine Discovery Fund
- Donald B. and Dorothy L. Stabler Foundation
- Sibley Hospital Foundation
- Grateful patients
