Dr. Cappelli’s research interest involves collaboration with oncologists to study patients developing rheumatic diseases after being treated for their cancer by a new oncology drug.
Rheumatologic Consequences of Immunotherapy to Treat Malignancies: The Tip of an Iceberg
Dr. Darrah has identified a unique subset of patients with Rheumatoid Arthritis at the molecular level. Her progress in the laboratory has improved disease monitoring and selection of effective therapies for RA patients.
Dr. Ana-Maria Orbai speaks about her research initiative pertaining to Psoriatic Arthritis patients. By asking a pool of patients from seven different countries, she was able to gather a core set of factors (for example, sleep, stiffness and emotional well-being, etc.) that are most important to people dealing with this disease. These findings will lead to improved treatment decisions for Psoriatic Arthritis patients.
International Patient and Physician Consensus on Psoriatic Arthritis Outcomes for Clinical Trials
Dr. Krista Gutierrez presented her research on patient-centered outcomes research at the 2016 Annual American College of Rheumatology Conference. Her interest in this study came from making sure the questions doctors are asking their patients are the most relevant to their respective diseases.
Promis Short Forms Are Relevant to People Living with RA: Results of Cognitive Debriefing Interviews
The Johns Hopkins Arthritis Center has a three part mission focusing on patient care, research and education. Our team is dedicated to providing the best clinical care possible, from understanding the biology of arthritis, to learning new ways to diagnose it, to performing research aimed to address patient’s quality of life. Educating our patients is as important as giving them the best clinical care possible.
Patient-Centered Outcomes Research gives patients the ability to tell their story. By filling out questionnaires that ask about fatigue, pain, stiffness and depression, patients are able to have more in-depth conversations with their rheumatological doctors about the areas in their life that need the most attention. The PCOR initiative and new way of conducting research has brought improved results in patient’s daily life.
