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Home / Advancing Patient Centered Outcomes Research / APCOR Agenda

APCOR Agenda

7:25 – 7:55 AM

Breakfast

7:55 – 8:00 AM

Welcome

David Hellman, MD
Aliki Perroti Professor of Medicine
Vice Dean, Johns Hopkins Bayview Medical Center
Johns Hopkins University School of Medicine
Director, Department of Medicine
Johns Hopkins Bayview Medical Center

8:00 – 8:10 AM

Introduction and Objectives

Clifton O. Bingham III, MD
Associate Professor of Medicine
Division of Rheumatology, Department of Medicine
Johns Hopkins University School of Medicine
Director, Johns Hopkins Arthritis Center
Director, Center for Patient-Centered Outcomes Research in Rheumatology

8:10 – 8: 35 AM

Patient’s Perspective of Research as a Research Partner

Amye Leong, MBA
International Spokesperson
UN Bone and Joint Decade
President, Healthy Motivations
Santa Barbara, California

8:35 – 9:10 AM

PCOR: Revolutionizing Care or Old Win in New Bottles?

Susan Bartlett, PhD
Associate Professor of Medicine
McGill University
Adjunct Associate Professor of Medicine
Division of Rheumatology
Johns Hopkins University School of Medicine
Canadian Representative, PROMIS international

9:10 – 9:35 AM

Considerations in Qualitative and Mixed Methods

Katherine Clegg-Smith, PhD
Associate Professor of Medicine
Bloomberg School of Public Health
Director, Center for Qualitative Studies

9:35 – 10:00 AM

What is Important to RA Patients? Engaging Patients in Research and Guidelines: An International Perspective in Rheumatology

Laure Gossec, MD, PhD
Professor of Rheumatology
Paris 06 University and Pitié-Salpétrière Hospital
Paris, France
Co-Chair, Patient Stream, OMERACT

10:00 – 10:25 AM

Engaging Patients as Stakeholders

Suzanne Schrandt, JD
Deputy Director of Patient Engagement
Patient Centered Outcomes Research Institute (PCORI)

10:25 – 10:40 AM

Panel Discussion

10:40 – 10:55 AM

Break

10:55 – 11:05 AM

Integration of PROs in Clinical Settings

Clifton O. Bingham III, MD
Associate Professor of Medicine
Division of Rheumatology, Department of Medicine
Johns Hopkins University School of Medicine
Director, Johns Hopkins Arthritis Center
Director, Center for Patient-Centered Outcomes Research in Rheumatology

11:05 – 11:30 AM

How PCOR is Subverting the Clinical and Research Enterprise

Albert Wu, MD, MPH, FACP
Professor of Health Policy and Management and Medicine
Director, Center for Health Services & Outcomes Research
Johns Hopkins Bloomberg School of Public Health

11:30 – 11:55 AM

PCOR Changes in Medical Education and Clinical Care

Cynthia Rand, PhD
Professor of Medicine
Associate Dean for Faculty
Johns Hopkins University School of Medicine
Deputy Director of Patient-Centered Care
Department of Medicine
Johns Hopkins Bayview Medical Center

11:55 – 12:35 PM

Panel Discussion—Hopkins Involvement in PCOR

Clair Snyder, PhD
Associate Professor of Medicine
Johns Hopkins University School of Medicine and
Johns Hopkins Bloomberg School of Public Health

Rebecca Asklakson, MD PhD
Assistant Professor of Medicine
Department of Anesthesiology and Critical Care Medicine
Johns Hopkins University School of Medicine

Wendy Bennett, MD MPH
Assistant Professor of Medicine
Division of General Internal Medicine
Johns Hopkins University School of Medicine
Welch Center for Prevention, Epidemiology, and Clinical Research

Cynthia Boyd, MD, MPH
Associate Professor of Medicine
Division of Geriatrics
Johns Hopkins University School of Medicine
Department of Health Policy and Management
Johns Hopkins Center on Aging and Health
Johns Hopkins Bloomberg School of Public Health

Diana Gumas
Director of Clinical and Clinical Research
Information Systems, Johns Hopkins Medicine

12:35 – 1:00 PM

Developing PCOR Infrastructure and Training Needs

Susan Bartlett, PhD
Associate Professor of Medicine
McGill University
Adjunct Associate Professor of Medicine
Division of Rheumatology
Johns Hopkins University School of Medicine
Canadian Representative, PROMIS international

Clifton O. Bingham III, MD
Associate Professor of Medicine
Division of Rheumatology, Department of Medicine
Johns Hopkins University School of Medicine
Director, Johns Hopkins Arthritis Center
Director, Center for Patient-Centered Outcomes Research in Rheumatology

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