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GRASPing the Factors associated with Severe Scleroderma in African Americans

Patient with Doctor

We report results from analysis of clinical, laboratory and socio-demographic data provided by the GRASP cohort, which has enhanced our knowledge about factors associated with significant manifestations of scleroderma in African Americans.

Filed Under: Research Tagged With: Scleroderma

LEAP – Winter 2018 : Secret Messages : Decoding with Filters

LEAP - Winter 2018

For too long, doctors treating rheumatic diseases have had to base their management on instinct and experience.

The problem is that each physician has a limited experience – which means that many times we basically had to guess at how to treat a specific patient, using trial and error to find out what might work best.

Filed Under: Promotions Tagged With: LEAP Magazine

The Clinical, Symptom, and Quality-of-Life Characterization of a Well-Defined Group of Patients with Post Treatment Lyme Disease Syndrome

Post Treatment Lyme Disease Syndrome Research Update

This study shows that well-validated symptom surveys could be used by doctors to identify suggestive symptom patterns that could lead to the diagnosis of PTLDS.

Filed Under: Research Tagged With: Lyme Disease

Matters of the heart: a newly discovered type of inflammatory muscle disease with heart involvement

Matters of the Heart

An antibody biomarker was recently discovered that identifies people with chronic skeletal muscle disease and severe heart muscle involvement.

Filed Under: Research

The Value of the Patient’s Perspective in Myositis Research

Focus Group

A survey of more than 600 people with myositis from the US, Korea, and Sweden identified 5 aspects of living with the disease that are most important to patients.

Filed Under: Research Tagged With: Myositis, Patient-Centered Research, PCOR

Muscle biopsy findings identify a unique subgroup of patients with severe Scleroderma

Scleroderma

A new study found that people with scleroderma who have muscle weakness due to the accumulation of fibrous tissue in their muscles, are at risk for severe disease outcomes including death from heart disease.

Filed Under: Research Tagged With: Fibrosing Myopapthy, Scleroderma

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LEAP Winter 2025: Fighting Fire with Fire

February 27, 2025

LEAP Winter 2024: At the Cusp of Breakthroughs

February 23, 2024

LEAP – Winter 2023: Big Data, Individualized Care

February 23, 2024

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